Since chronic pain came into my life 9 years ago, I’ve been trying to deal with a new way of living and with it a whole new way of thinking. And I’ve done a lot of thinking in the past few weeks as I’ve hit some highs and then some low-down lows.There were times in the past week and a half that I couldn’t get out of bed. There have been days in the past week where light and sound were excruciating to my senses. Two days ago I dropped a dinner plate when my hand spasmed and all I could do was helplessly look at the shattered pieces on the floor.
The feeling of helplessness just builds up…and up…and up….
When I’m having a really bad episode and all I can do is lie in bed and stare at the ceiling, I notice a cobweb in the corner. I’ll turn my head and see an empty water glass that needs to be washed. When I turn the other way I see that my closet is messy. For days, sometimes weeks, (at one point about five years ago it had been almost 6 months) my eyes and mind will focus on all the imperfections in my home and see it as a reflection of me as a person. Me as a wife and mother and how I cannot care for those I love the most.
Then when I begin the upswing of good days, I can’t simply snap my fingers and make all the stress disappear. I fill up with anxiety every time I see my overloaded inbox, the empty refrigerator, and the giant piles of laundry. Then I’m like a lot of chronic pain sufferers in that when I have one decent feeling day, I will run around frantically trying to catch up. I’ll clean like a maniac in hopes I can get it all done before the pain returns. And it always does, and at that point it’s usually pissed.
Even after all these years, I’ve yet to fully come to terms with my illness and pain. I’ve read countless books on my conditions and have seen the top specialists. I’ve been coaxed into getting reacquainted with my body (a body that seemed to no longer like me) in order to be more in tune to our (its) rhythm. I’ve learned about energy management and how to create a schedule that works for me. I have seen the need to pattern my week so that I have active days followed by more restful days. I know I have to to do a little bit at a time to prepare for holidays, vacations, or long, hectic days. (I’m eternally grateful that things were good for the California trip) I’ve been schooled in the ways of expressing what my needs are and how to drop my pride when I have to ask for help.
Easier said than done.
I readily grasped the idea to make an outline for my life. I’m excellent at brainstorming ideas and making plans and schedules, but I’m absolutely terrible at following through. You see, I’m a list-maker. I LOVE to make lists. I have a list for nearly everything. Things I need to do, things I want to do, things I need help with, menu planning lists, shopping lists, need to follow-up on lists, home project lists, and on and on it goes.
During the bad times I’ll have short-term memory issues and terrible brain fog, getting easily confused (especially with dates and phone numbers). So I have spiral bound notebooks in every corner of the house (and in my project studio, but let’s not even go there) so that I can jot down ideas and plans as they come to me. Then when I get too many of these ideas and lists and sketches scattered about, I will tear them out and slip them into clear sheet protectors and then place them in the correct three-ring binder, complete with labeled tabs.
Then after I have everything in order, I don’t know where to begin. Which binder was the kids’ back to school supply list in? Where was the list for treatment plans? Where was the mind-map for my dream week? This eventually leads me to the fact that the current organizational system isn’t working.
So I’ll spend time flipping through the shiny plastic coated papers and sort them into new categories. Then I’ll begin to rearrange the tabs, like I’d like to rearrange my life.
I know what you’re probably thinking. That I’m a control freak. Anal. OCD. Manic. Micro-manager. Perfectionist. Hypercritical. Persnickety. Wonder Woman Wannabe.
I raise my hand in surrender. I’m all of the above…most of the time.
So here I go again. I have pared down to one small binder and I’ve put the other binders away. I am back to the basics with my original, simple day to day plan. I know it works because some of my best months in the past few years have been when I followed it. The problem has always been easing back into the routine after being out of commission for more than a few days. The perfectionist in me doesn’t want to just jump in where I am. I want to start with a clean, perfect house. I’m even sure there is such a thing. Or I think it’ll be best if I start at the beginning of the month. Or after ___________.
Well it’s Monday. I suppose it’s as good a day as any to start. I got out of bed and showered. I even followed my ‘routine’ for the day. I’ll be honest. I had a little bit of difficulty following my plan today. It wasn’t hard remembering what needed to be done, but hard to pace myself. To not panic. To not work ahead. To make myself stop between things. To not do two things at once. To have realistic expectations. And to celebrate the small successes as long as I was making progress.
Today wasn’t perfect, but I think I can call it a success.
Many Blessings on your Journey )O(