Wow. I don’t even know where to begin so I guess I’ll just start by writing about the Good in my life. I have so many things I feel incredibly thankful for, but I want to share the fact that I am officially off of the opioids! Yay!
No thanks to the pain management doctor though. He was becoming less and less helpful in working with me tapering off. I think the pain clinics will take your money as long as they can while they push for you to try the “new and improved” spinal cord stimulator or another spinal injection (I’ve had 18 of those injections and they never worked, but I knew it kept my doctor(s) happy and me leaving the office with new scripts).
I had been at a standstill for months and was really, really frustrated. Then the morning of my last scheduled appointment (in August) I simply woke up and said, “I’m done.” That was a defining moment for me. Not showing up to an appointment could easily break my pain management contract. And with the opioid epidemic, it was no secret that it was getting harder and harder to find pain management doctors that would accept the responsibility of new patients.
But I truly felt those words, “I’m done”. They were Soul Words. It was a Body-Mind-Spirit moment of consciousness; the kind that can make your toes curl, like the blissful moment you fall into an orgasm. But unlike orgasms, Soul Words tended to elude me. This was profoundly different than saying “I’m working on getting off these meds that I’ve been taking for the past decade”, which I always meant each time I said it, but during that mind-blowing moment it became crystal clear to me that I would be on the meds as long as a dr. told me I needed them; that it was okay; go on, have some more. It was all simultaneous, and from the very center of my Soul, the Source of those two powerful words, I faced honesty and truth without judgement and without doubt. I was done. So I didn’t go to that appointment.
The next day I felt a little uneasy, but I put on a new fentanyl patch (which would end up being my final one) and began to take note of when I actually “needed” a pill for the breakthrough pain. I was still being prescribed 180 of the 10mg oxycodones for the “breakthrough” pain each month to take along with the fentanyl. I’ve been prescribed as many as 210 pills with the 15 patches; but this didn’t change the fact that I had way more than I should. Way more than I needed. People without the opioid tolerance are usually sent home after surgery with 30 pills of 5mg oxy, vicodin, percocet, etc. with maybe one refill, if they’re lucky. For me, that would be like getting a box of Tic Tacs, because every month the pharmacist would hand me enough opioids to kill a pack of mules.
Making the decision that I was done made me realize what a habit it had become to just take a breakthrough pain pill at the first sign of pain, even the slightest twinge. You see, it had been drilled into my head that “you can’t let the pain get too bad because it’ll be harder to get under control”. Well, of course I didn’t want that to happen!
Now I had to face the unpleasant task of re-shaping my thoughts and begin to lessen my fear of something getting out of control. Oh, the irony! At first it was awful to make myself stop each time I reached for pill and ask, what else can I try first? (and not in conjunction with?). I knew I would have to deal with some additional discomfort than what I already lived with every day.
I knew I could try an ice pack. A warm epsom salt bath. Some gentle yoga. Qigong. Meditation. The tens unit. The compound cream. Writing. Creating. Reading. Even that awful acupressure mat. I had this mental list of the things I knew I could try first and If those things failed, I took some Advil or Tylenol. Then I took an oxy. Sometimes another one an hour later. Then I began to notice that as I reached for the pills less and less, the first options were working better and better.
It took a long time though.
And I am not a patient person.
I knew I had hit a milestone when I began breaking the oxys in half. Little by little, day by day, I made progress. Then something totally amazing happened. I went a day without any pills and didn’t even realize it until I went to bed and saw half an oxy from the day before still sitting there on the shelf of my medicine cabinet.
I’m in no more pain than when I was on the opioids. I haven’t had any worse Fibromyalgia flare-ups either (my rheumatologist had once told me that long-term opioid use can actually cause Fibro). Well, no dwelling on the past decade, eh?
My therapist told me it could take another month or two to get my serotonin and dopamine levels back to normal, but at least he’s not suggesting we increase my antidepressants. I will more than likely be on the neurontin the rest of my life because of nerve damage from surgery #1. But I’m okay with that.
Moving forward, I ended up flushing 6 leftover patches and 97 oxycodones. l still have the other half of the last oxycodone sitting on the middle shelf of my medicine cabinet. When I see it every morning and night when I take my other meds, I think about how it no longer has any power over me. It’s a reminder of how far I have come.
Many Blessing on Your Journey )O(